After a lot of hard work, we are pleased to announce that the first Kidney Transplant PSP survey is now live.
Please visit the survey page to let us know your uncertainties regarding the management of kidney transplant recipients and living donors. The survey should take no more than 10 minutes to complete.
If you would prefer a paper version of the survey, either download a copy to print or contact us and we will put one in the post.
Please help us to promote this project by telling your friends/colleagues and mentioning us on social media!
Take the survey now!
Following our last meeting, the steering group are pleased to announce that the first Kidney Transplant PSP survey will be launching on October 1st, 2014.
This survey will ask patients, carers and clinicians to identify unanswered questions that they have on kidney transplantation, that they would like to see addressed in future research.
To take part, visit our survey page after the 1st October. For a reminder nearer the time, register your interest and sign up for our newsletter on the contact page.
We are pleased to announce that the British Society for Histocompatibility and Immunogenetics (BSHI) have signed up as a partner to the Kidney Transplant PSP. The BSHI represents professionals with an interest in histocompatibility and immunogenetics, so their involvement with the PSP will ensure that we capture uncertainties relating to transplant histocompatibility and tissue typing.
We are pleased to announce that Kid’s Kidney Research have signed up as a partner to the Kidney Transplant PSP. The organisation raises funds for research into children’s renal disease, so we hope that the PSP will help to identify uncertainties in paediatric kidney transplantation that may warrant future funding.
We are pleased to announce that Alport UK have signed up as a partner to the Kidney Transplant PSP. Alport syndrome is a genetic disorder that results in kidney failure and hearing loss. Kidney transplantation is a potential treatment option for patients with Alport syndrome, so is is important that this group are represented in the PSP.
We are pleased to announce that the Oxford Transplant Foundation has signed up as a partner to the Kidney Transplant PSP. The foundation raises funds to support patients and staff at the Oxford Transplant Centre, including research activities.
We are pleased to announce that the South West Thames Institute for Renal Research and the South West Thames Kidney Fund have signed up as partners to the Kidney Transplant PSP. Both organisations are involved in research aimed to improve the treatment and care of patients with renal disease.
We are pleased to announce that the Give a Kidney Charity have signed up as a partner to the Kidney Transplant PSP. The charity provides education and support for living kidney donors. As living donation falls within the scope of the Kidney Transplant PSP, this partnership will help us in our aim to reflect the opinions of donors in the PSP process.
We are pleased to announce that the British Association for Paediatric Nephrology (BAPN) have signed up as a partner to the kidney transplant PSP. As the scope of the PSP includes paediatric transplant recipients, this is an important step towards ensuring that all those with an interest in this area are represented in the PSP process.
We are pleased to announce that the trustees of the Polycystic Kidney disease (PKD) charity have agreed to act as a partner to the Kidney Transplant PSP. They will be helping us promote the process to their members, giving those involved with the charities a chance to have their say in the future of transplant research.