Category Archives: Survey

Prioritisation survey is still open – let us know your views

The prioritisation survey has been open for around a month now, and we have so far received nearly 200 responses.  There is still plenty of time for you to have your say – we are especially keen to hear from more transplant patients, carers, live donors and patients on the transplant waiting list.  We also welcome responses from healthcare professionals from all disciplines involved in kidney transplantation, including nephrologists, surgeons, clinical scientists, pharmacists, dieticians, nurses and technicians.

To take the survey online, click here.

The steering committee would like to thank all of those who have responded so far.

Prioritisation survey now open!

We are pleased to announce that the Kidney Transplant PSP Prioritisation survey opens today.

This survey asks patients, carers and healthcare professionals to rate the importance of the unanswered questions that we have identified in the area of kidney transplantation. We will use your responses during a final priority setting workshop to be held in January 2016.

Take the survey now.

The survey will take around 10 minutes to complete. Please share it with friends and colleagues – we are very keen for the views of as many people as possible to be represented.

Survey launch date moved to 9th October

The launch date for the Kidney Transplant PSP prioritisation survey has moved to the 9th October, to coincide with the start of the National Kidney Federation patient’s conference. The conference will be held at the Hilton Hotel in Reading from the 9th-11th October, and provides the ideal opportunity to launch the survey and get the opinions of as many patients as possible in the prioritisation exercise.

Prioritisation survey to open on the 19th October

We would like to thank everyone who responded to our first survey – we received over 180 responses and have gathered nearly 500 treatment uncertainties. We have now worked through these, and identified those that have not been answered by existing research.

The next step is to ask you to help us to prioritise the remaining uncertainties for future research. As before, we would like the views of patients, carers and healthcare professionals to ensure that the final list represents all those affected by kidney transplantation.

The survey will launch on the 19th October, and we be accessible through this website. To register your interest for a reminder nearer the time, visit our homepage and click the “register your interest” button at the top right of the page.

Second Steering Group Meeting Held on 30th March

The second Kidney Transplant PSP steering group meeting was held at the Royal College of Surgeons in London on the 30th March. The first survey was summarised – we received 498 uncertainties from 183 respondents, with an excellent mix of backgrounds (patient, carer and professional) and topics covering over 50 categories.

The steering group ran through the uncertainties submitted from the first survey and narrowed them down to 97 indicative uncertainties. Over the coming months, we will be working hard to identify existing evidence and develop a process for prioritisation.

The steering group would like to thank everyone who took part in the first survey. The strength of the PSP process is in getting input from as many patients, carers and professionals as possible to ensure that the final result represents your views.

First survey – deadline extended to 15th December

So far we have received over 175 responses and 350 uncertainties from our first survey – thank you to all that have responded!

As it has only just reached some of the national patient magazines, we have decided to keep the survey open longer than originally planned to give everyone the chance to get involved. The deadline has now been extended to 15th December 2014, so visit the survey page now to ask your questions for kidney transplant research.

First Survey Now Live!

After a lot of hard work, we are pleased to announce that the first Kidney Transplant PSP survey is now live.

Please visit the survey page to let us know your uncertainties regarding the management of kidney transplant recipients and living donors. The survey should take no more than 10 minutes to complete.

If you would prefer a paper version of the survey, either download a copy to print or contact us and we will put one in the post.

Please help us to promote this project by telling your friends/colleagues and mentioning us on social media!

Take the survey now!

First Survey launch date set to 1st October!

Following our last meeting, the steering group are pleased to announce that the first Kidney Transplant PSP survey will be launching on October 1st, 2014.

This survey will ask patients, carers and clinicians to identify unanswered questions that they have on kidney transplantation, that they would like to see addressed in future research.

To take part, visit our survey page after the 1st October. For a reminder nearer the time, register your interest and sign up for our newsletter on the contact page.