Patients, carers and clinicians
We would like the Kidney Transplantation Priorities Setting Partnership needs to reflect the experiences and perspectives of the following groups of people:
- Adults and children on the waiting list for a kidney transplant and their carers/parents
- Adults and children who have previously received a kidney transplant and their carers/parents, even if this transplant has failed
- People who have donated a kidney as a living donor
- Medical doctors, nurses and professionals allied to medicine with clinical experience of kidney transplantation
If you fall within these groups, we would like you to take part in the PSP process. You can help by:
- Completing our upcoming survey about unanswered questions in kidney transplantation
- Helping us to prioritise these questions
- Helping us to promote the PSP process. This could be:
- Within a patient or professional organisation that you are involved in
- Within your local transplant centre
- Via social media (twitter, facebook etc.). Please use the hashtag #KidneyTxPSP
As we are specifically collecting research priorities for the UK at this stage, you must be within the UK to take part in our surveys.
If you would like to learn more, or be kept up-to-date with our progress, please get in touch.
Organisations and charities
If your charity or organisation (patient or professional) supports the care of patients undergoing Kidney Transplantation, you can get involved in the Kidney Transplant PSP by signing up as a partner.
This is free and quick to do – it means that your organisation will receive updates on the progress of the partnership and be invited to take part in the following:
- Respond to a questionnaire survey which gives you the opportunity to tell us your thoughts about the unanswered questions in kidney transplantation – this will probably be carried out online or as part of a discussion group
- Cast your votes on the unanswered questions in kidney transplantation that you think are the most important - this will probably be online
- Be asked to contribute to a final priority setting workshop – this lasts for one whole day
Partner organisations help to promote the PSP to their members in a number of ways:
- Advertise the PSP on their website and user forums
- Promote awareness of the PSP at meetings
- Promote the PSP on social media - please use the hashtag #KidneyTxPSP
Partner organisations are asked to affiliate with the James Lind Alliance to express their support for its work.
If your organisation is intersted in bocoming a partner in the Kidney Transplantation PSP, please get in touch.
Help us to promote the Kidney Transplant PSP in your organisation.
If you would like paper copies of any of these materials, please contact us.